GDPR 2018

April 30th, 2018
New data protection rules are coming into force 25th May 2018.
We will be contacting all of our members to ask them to ‘opt back in’ by sending us an email to say that they would like to remain a member of BTCT and that they understand that we hold their details on file via a secure server.
Please send us an email if you would like to remain.

The Latest Clinical Trial for Thyroid Cancer is well under way

August 30th, 2017

The IoN trial is the only national clinical study of thyroid cancer in the UK. Funded by Cancer Research UK, it aims to show whether certain patients with well-differentiated thyroid cancer need radioiodine ablation or not, when they have already had their thyroid gland removed and are on hormone treatment.

The clinicians have been searching for a reliable answer to this important question affecting our patients for several decades. This trial led on from the previous national thyroid cancer study (HiLo) of 438 patients, also with well-differentiated thyroid cancer, which showed that low dose radioiodine was just as effective as the standard high dose.

Clinical practice worldwide changed as a result of HiLo, and the low dose is now standard. This would not have been possible without the essential involvement of the 438 UK patients who very kindly agreed to be part of this important trial.

The IoN study represents an opportunity to take part in another major UK study. There are 31 hospitals and many expert thyroid cancer doctors involved, and more than 345 patients have been recruited so far. If you are also interested in taking part please speak to your doctor at your local hospital, to see if they are already running the IoN study.

Butterfly Thyroid Cancer Trust is delighted to be supporting this exciting research project: Near Infrared Autofluorescence of the Parathyroid Glands: A Novel Method for Reducing the Incidence of Permanent Hypoparathyroidism Following Total Thyroidectomy for Thyroid Cancer.

March 7th, 2017

Butterfly Thyroid Cancer Trust is delighted to be supporting this exciting research project: Near Infrared Autofluorescence of the Parathyroid Glands:
A Novel Method for Reducing the Incidence of Permanent Hypoparathyroidism Following Total Thyroidectomy for Thyroid Cancer.
Aimee N. di Marco, Neil S. Tolley, F. Fausto Palazzo
A low level of calcium in the blood (‘hypocalcaemia’) affects up to a quarter of patients following surgery for thyroid cancer. It results when the blood supply to the very tiny parathyroid glands (attached to the thyroid) is affected during surgery. If the parathyroid function does not recover it may require lifelong treatment with calcium and vitamin D. This ‘hypoparathyroidism’ may significantly affect patients’ quality of life due to the need for medication, monitoring and in the long term it may potentially cause problems with kidney function, neurological complications and infections.
The aim of this project is to see if it is possible to exploit a natural property of parathyroid tissue, ‘autofluorescence’, to prevent hypoparathyroidism. Until now, surgeons have had to rely entirely on their experience in the identification of the parathyroid glands and their judgment as to whether their blood supply is sufficient to function normally. In this study, Mr. Palazzo, Professor Tolley and team will be using the ‘Fluobeam 800’ (a near-infrared camera which detects autofluorescence) to check for unrecognized parathyroids on the thyroid gland during surgery and see whether this allows more parathyroid glands to be preserved in situ or, if they do not have a good enough blood supply, allow them to be transplanted into the neck muscle (‘autotransplantation’).
The team is very grateful to the Butterfly Thyroid Cancer Trust for the support which is enabling them to carry out this study: they hope that this work will provide a valuable insight into the effectiveness of this exciting new technology and translate into direct benefit to patients undergoing surgery for thyroid cancer.

Kate Farnelll MBE, Dr Kate Newbold and Mr Saba Balasubramanian discuss the “Over Diagnosis of Thyroid Cancer ‘ with Dr Mark Porter on BBC Radio Fours’s Inside Health.

March 3rd, 2017

Kate Farnelll MBE, Dr Kate Newbold and Mr Saba Balasubramanian discuss the “Over Diagnosis of Thyroid Cancer ‘ with Dr Mark Porter on BBC Radio Fours’s Inside Health.

http://www.bbc.co.uk/programmes/b019dl1b