Welcome to Butterfly Thyroid Cancer Trust

Butterfly Thyroid Cancer Trust is the first national supporter of patients with Thyroid Cancer.

As a group dedicated solely to the support of patients with Thyroid Cancer we can offer fellow thyroid cancer patients who wish to join us the following:

  • Use of the dedicated helpline to speak to someone who has had the disease.
  • E-mail and telephone contact with group members to share experiences
  • A "buddy" to help you through the stages of surgery, Radioiodine treatment and follow up
  • Access to reliable up-to-date written information about the disease
  • Access to a group member in clinic at the Northern Centre for Cancer Care (NCCC), Freeman Hospital

We are available on this number on Monday to Friday 10am-4pm. Outside these times, please leave a message on our answer phone and we will get back to you as soon as we can.

Your Treatment Journey

Thyroid Cancer has an 80-90% cure rate. Find out about the steps you might take in your journey towards recovery.

About Thyroid Cancer

Learn about the different types of Thyroid Cancer, and which types of treatments are available to patients.

I131 Treatment

Useful information regarding Radioiodine (I131) treatment.

Thyroid Cancer Forum 2016

Butterfly hosted the first ever UK Patient/Doctor Thyroid Cancer Forum on 5th December 2016 in London.

Click one of the links below to watch a video of the event.

Thyroid Cancer Patient Information DVD

To view the full film please contact us for the password

Do you have progressed or advanced thyroid cancer? Watch the trailer for ‘ Christine’s Story - living with advanced thyroid cancer

Watch our film “ The Butterfly Effect” to learn how Butterfly began

Latest News

Latest advice for patients having RAI Treatment Updated September 2020 Thyroid cancer: radioactive iodine treatment during COVID-19 pandemic (v3 Sep 2020) Now that we are a few months in to the COVID-19 pandemic and have a greater understanding of the disease and it’s trajectory we have updated our guidance on RAI treatment. It is anticipated […]

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Thyroid Awareness Month Thyroid cancer is on the rise. It’s a non-smoking related condition that can affect people of any age. Lorna Nickson Brown discovered she had thyroid cancer after she found a lump in her neck. Don’t put your neck on the line. If you find a lump, get it checked by a doctor. […]

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Please take our survey on the impact of COVID 19 for Thyroid Cancer Patients. https://www.surveymonkey.co.uk/r/YWJZJKR

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Patrons

His Grace the Duke of Northumberland
Dr.C.Harmer F.R.C.P. F.R.C.R
Prof .Markus Luster (Germany)
Dr.M.Tuttle MD (USA)

FOUNDER/DIRECTOR

Kate Farnell M.B.E.

MEDICAL ADVISOR

Dr J. Wadsley FRCR

BOARD of TRUSTEES

Mr.R Bliss FRCS
Mr.F.W.Stafford F.R.C.S
Mr J Salter
Mr.D.J.Farnell Bsc
Mrs R Newton
Mrs L Abbs RN

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Thyroid Cancer Specialist Nurse Support

There are National Macmillan nurse specialists who can offer advice and support to anyone in the UK affected by thyroid cancer. Their contact details are:

Ingrid

ingrid.haupt-schott@wales.nhs.uk
Tel: 02920 615 888 extn 6308

Information Nurse Specialists

Tel: 0808 808 0000 Press 1, Option 3