Welcome to Butterfly Thyroid Cancer Trust

Butterfly Thyroid Cancer Trust is the first national supporter of patients with Thyroid Cancer.

As a group dedicated solely to the support of patients with Thyroid Cancer we can offer fellow thyroid cancer patients who wish to join us the following:

  • Use of the dedicated helpline to speak to someone who has had the disease.
  • E-mail and telephone contact with group members to share experiences
  • A "buddy" to help you through the stages of surgery, Radioiodine treatment and follow up
  • Access to reliable up-to-date written information about the disease
  • Access to a group member in clinic at the Northern Centre for Cancer Care (NCCC), Freeman Hospital

We are available on this number on Monday to Friday 10am-4pm. Outside these times, please leave a message on our answer phone and we will get back to you as soon as we can.

Your Treatment Journey

Thyroid Cancer has an 80-90% cure rate. Find out about the steps you might take in your journey towards recovery.

About Thyroid Cancer

Learn about the different types of Thyroid Cancer, and which types of treatments are available to patients.

I131 Treatment

Useful information regarding Radioiodine (I131) treatment.

Thyroid Cancer Forum 2016

Butterfly hosted the first ever UK Patient/Doctor Thyroid Cancer Forum on 5th December 2016 in London.

Click one of the links below to watch a video of the event.

Thyroid Cancer Patient Information DVD

To view the full film please contact us for the password

Do you have progressed or advanced thyroid cancer? Watch the trailer for ‘ Christine’s Story - living with advanced thyroid cancer

Watch our film “ The Butterfly Effect” to learn how Butterfly began

Latest News

COVID-19 Advice for patients with thyroid cancer (i) Patients who have completed treatment for thyroid cancer Patients who have previously received treatment for thyroid cancer such as surgery, with or without radioiodine (remnant ablation or radioiodine therapy), are not considered at higher risk of infection from COVID-19. (ii) Patients in whom surgery for thyroid cancer […]


Covid 19 update RAI Treatment. After very careful consideration some centres have decided to postpone RAI treatment for thyroid cancer patients . This is not a nationwide decision so please check with your local thyroid cancer care team for advice and information .


Coronavirus. We are receiving a lot of questions about thyroid cancer and Corona Virus . Our expert medical team are preparing a statement but for those who have had curative surgery and are without other health problems should not be at any higher risk than the general public. For other patients if you have concerns […]



No recent Facebook posts to show


His Grace the Duke of Northumberland
Dr.C.Harmer F.R.C.P. F.R.C.R
Prof .Markus Luster (Germany)
Dr.M.Tuttle MD (USA)


Kate Farnell M.B.E.


Dr J. Wadsley FRCR


Mr.R Bliss FRCS
Mr.F.W.Stafford F.R.C.S
Mr J Salter
Mr.D.J.Farnell Bsc
Mrs R Newton
Mrs L Abbs RN


Thyroid Cancer Specialist Nurse Support

There are National Macmillan nurse specialists who can offer advice and support to anyone in the UK affected by thyroid cancer. Their contact details are:


Tel: 02920 615 888 extn 6308

Information Nurse Specialists

Tel: 0808 808 0000 Press 1, Option 3