Useful contacts

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British Thyroid Foundation (BTF)

A patient led charitable organisation dedicated to helping those with thyroid disease.

Tel: 01423 709707 / 709448

Macmillan Cancer Support

Macmillan cancer support aims to improve the lives of people affected by cancer by providing practical, medical, emotional and financial support.

Tel: 0808 808 2020

Association for Multiple Endocrine Neoplasia Disorders (A.M.E.N.D.)

Patient led charity supporting patients with M.E.N. types 1 and 2.

Tel: 01892 516076

Cancer Information Centre (C.I.C.)

The C.I.C., within the Northern Centre for Cancer Care at Newcastle General Hospital, is situated in the main patient waiting area. It is managed by a trained oncology nurse who is supported in the Centre by a group of volunteers, some of whom have personal experience of cancer.

The centre provides basic and easy-to-understand information on subjects of interest to cancer patients, their families, friends and carers including the effects that a cancer diagnosis can bring and financial help.

Opening hours 10 am-4 pm Monday-Friday
Tel: 0191 256 3596 during office hours (answerphone service at all other times)

Neck Check 2011

The UK's first Thyroid Cancer Awareness Campaign

cancerbackup

Macmillan Cancer Support and Cancerbackup merged in April 2008.

Thyroid Cancer Forum UK

This web site is the brainchild of Consultant Oncologist Laura Moss from Velindre Hospital, Wales.

It gives professionals thoughout the UK the opportunity to discuss Thyroid Cancer cases.

It also contains useful, straightforward information for patients.

The forum also:

circulates journal abstracts and information on forthcoming courses and meetings,

has a reference document library,

has a prospective data collection facility.

The discussion forum also allows professionals to discuss general thyroid cancer management issues and cases (patients are of course anonymous).

Dr Moss won a  Pfizer Excellence in Oncology Award in 2007 for her work with this innovative project.

Rare Cancers Forum

A UK charity that offers general advice and information about rare and less common cancers and facilitates supportive networking between patients.

Get A-Head

UK Birmingham based charity fighting cancer and other head and neck diseases.

Thyroid Cancer Survivors Association

American based organisation supporting people with thyroid cancer.

My name is NOT cancer

Helping people understand a little of what it is like to have cancer . . . and to not be defined by it.

You were a person with a life before diagnosis and will be after. The struggle is in being the person with the life separate from cancer while being in the grip of the illness.

Aimee Cotton

Visit this web site to find out why Aimee needs your knickers!

Aimee was diagnosed with Thyroid Cancer at the age of just 14. Her web site is dedicated to her life story, her feelings about it all and to “trying to ease others into knowing everything will be ok”.

Throughout the site you will find useful information about the disease itself, symptoms and Aimee’s own experience.

Surviving Thyroid Cancer

The story of Ruth Fawcett, a young thyroid cancer survivor.

Thyroid Cancer Support Group Wales

Patient led support group for thyroid cancer patients in Wales.

Tel: 0845 009 2737

Hypoparathyroidism UK

The UK's first HPTH information web site and support group. It is run for people with HPTH by people with HPTH, with help and advice from interested professionals.

It aims to support and empower its members and to provide advice and information. It hopes to raise awareness and understanding about Hypoparathyroidism and to campaign for a better level of care for people living with this condition.

Check your Neck

Support, education and awareness for thyroid cancer patients, their families and the lay-public from the Light of Life Foundation.

Cancer Counselling Trust

The Cancer Counselling Trust offers free telephone counselling for anyone impacted by cancer, across the UK.

They support cancer patients, their families, friends and care givers who seek counselling to help them through the difficult issues precipitated by a cancer diagnosis.

Cancer Research UK

The world's leading charity dedicated to research on the causes, treatment and prevention of cancer.

Thyroid Cancer Alliance

Thyroid Cancer Alliance (TCA) is an international coalition of national self-help organizations of thyroid cancer patients. The organizations have joined together in a number of projects to bring the patient voice to the Thyroid Cancer medical community.

British Thyroid Association (BTA)

Professional body for clinicians and scientists in the UK who manage patients with thyroid disease.

British Association of Endocrine & Thyroid Surgeons (BAETS)

For consultant medical practitioners who are actively involved in the management and treatment of endocrine diseases (or who were and are now retired) and for trainees with an interest in the management of endocrine diseases.

National Cancer Institute

Coordinates the United States National Cancer Program which conducts and supports research, training, health information dissemination, and other programmes with respect to the cause, diagnosis, prevention, and treatment of cancer, rehabilitation from cancer, and the continuing care of cancer patients and the families of cancer patients.

Their web site offers the general public and health professionals consumer-oriented information on a wide range of topics.

 

Helpline: 01207 545469
Monday-Friday, 10 am-4 pm