Welcome to Butterfly Thyroid Cancer Trust

Butterfly Thyroid Cancer Trust is the first national supporter of patients with Thyroid Cancer.

As a group dedicated solely to the support of patients with Thyroid Cancer we can offer fellow thyroid cancer patients who wish to join us the following:

  • Use of the dedicated helpline to speak to someone who has had the disease.
  • E-mail and telephone contact with group members to share experiences
  • A "buddy" to help you through the stages of surgery, Radioiodine treatment and follow up
  • Access to reliable up-to-date written information about the disease
  • Access to a group member in clinic at the Northern Centre for Cancer Care (NCCC), Freeman Hospital

We are available on this number on Monday to Friday 10am-4pm. Outside these times, please leave a message on our answer phone and we will get back to you as soon as we can.

Your Treatment Journey

Thyroid Cancer has an 80-90% cure rate. Find out about the steps you might take in your journey towards recovery.

About Thyroid Cancer

Learn about the different types of Thyroid Cancer, and which types of treatments are available to patients.

I131 Treatment

Useful information regarding Radioiodine (I131) treatment.

Thyroid Cancer Forum 2016

Butterfly hosted the first ever UK Patient/Doctor Thyroid Cancer Forum on 5th December 2016 in London.

Click one of the links below to watch a video of the event.

Thyroid Cancer Patient Information DVD

To view the full film please contact us for the password

Do you have progressed or advanced thyroid cancer? Watch the trailer for ‘ Christine’s Story - living with advanced thyroid cancer

Watch our film “ The Butterfly Effect” to learn how Butterfly began

Latest News

Join us for our 2nd Patient /Doctor Thyroid Cancer Forum 16th May 12noon-5pm, Centre for Life, Newcastle upon Tyne.   At this event we will be discussing the upcoming new thyroid cancer guidelines and what this means to patients . We will also be hearing about latest research as well as many other topics . […]


September is Thyroid Cancer Awareness Month .Watch our latest TV AD here ; https://youtu.be/YMJ_eK5FOu4


World Thyroid Cancer Rome June 2019 BTCT was represented at the World Congress on Thyroid Cancer by Consultant Thyroid Cancer Surgeon Mr Peter Truran FRCS from the Royal Victoria Infirmary in Newcastle. Pete presented our work on the update of RAI rooms across the UK to make the patient experience better. Pete says : The […]



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His Grace the Duke of Northumberland
Dr.C.Harmer F.R.C.P. F.R.C.R
Prof .Markus Luster (Germany)
Dr.M.Tuttle MD (USA)


Kate Farnell M.B.E.


Dr J. Wadsley FRCR


Mr.R Bliss FRCS
Mr.F.W.Stafford F.R.C.S
Mr J Salter
Mr.D.J.Farnell Bsc
Mrs R Newton
Mrs L Abbs RN


Thyroid Cancer Specialist Nurse Support

There are National Macmillan nurse specialists who can offer advice and support to anyone in the UK affected by thyroid cancer. Their contact details are:


Tel: 02920 615 888 extn 6308

Information Nurse Specialists

Tel: 0808 808 0000 Press 1, Option 3