Welcome to Butterfly Thyroid Cancer Trust

Butterfly Thyroid Cancer Trust is the first national supporter of patients with Thyroid Cancer.

As a group dedicated solely to the support of patients with Thyroid Cancer we can offer fellow thyroid cancer patients who wish to join us the following:

  • Use of the dedicated helpline to speak to someone who has had the disease.
  • E-mail and telephone contact with group members to share experiences
  • A "buddy" to help you through the stages of surgery, Radioiodine treatment and follow up
  • Access to reliable up-to-date written information about the disease
  • Access to a group member in clinic at the Northern Centre for Cancer Care (NCCC), Freeman Hospital

We are available on this number Monday to Friday from 10 am to 4 pm. Outside these times, please leave a message on our answer phone and we will get back to you as soon as we can.

Your Treatment Journey

Thyroid Cancer has an 80-90% cure rate. Find out about the steps you might take in your journey towards recovery.

About Thyroid Cancer

Learn about the different types of Thyroid Cancer, and which types of treatments are available to patients.

I131 Treatment

Useful information regarding Radioiodine (I131) treatment.

Thyroid Cancer Forum 2016

Butterfly hosted the first ever UK Patient/Doctor Thyroid Cancer Forum on 5th December 2016 in London.

Click one of the links below to watch a video of the event.

Thyroid Cancer Patient Information DVD

Do you have progressed or advanced thyroid cancer? Watch the trailer for ‘ Christine’s Story - living with advanced thyroid cancer

Watch our film “ The Butterfly Effect” to learn how Butterfly began

Latest News

A trial looking at selumetinib for thyroid cancer that has stopped taking up radioactive iodine (SEL-I-METRY). The Selimetry trial is now open at the Royal Marsden and more centres will be open soon.


Lenvima is now available for Thyroid Cancer patients in England! Excellent news for our patients with advanced thyroid cancer who have been waiting to access Lenvima (Lenvatenib). Oncologists in England can now prescribe the drug for patients that need it. If you have been waiting please get in touch with your oncologist, if they have […]


Butterfly Thyroid Cancer Trust is delighted to be supporting this exciting research project: Near Infrared Autofluorescence of the Parathyroid Glands: A Novel Method for Reducing the Incidence of Permanent Hypoparathyroidism Following Total Thyroidectomy for Thyroid Cancer. Aimee N. di Marco, Neil S. Tolley, F. Fausto Palazzo A low level of calcium in the blood (‘hypocalcaemia’) […]



Timeline Photos

Very sad state of affairs when thyroid cancer CNS ‘ request further supplies of our DVD for their patients ( who love them ) and the post room staff refuse to sign to accept them :(((((

1 day ago


His Grace the Duke of Northumberland
Dr.C.Harmer F.R.C.P. F.R.C.R
Prof .Markus Luster (Germany)
Dr.M.Tuttle MD (USA)


Kate Farnell M.B.E.


Dr.U.K.Mallick F.R.C.R


Dr.P.Perros F.R.C.P.


Mr.R Bliss FRCS
Rev A.J.Harding
Mr.F.W.Stafford F.R.C.S
Mr J Salter


Thyroid Cancer Specialist Nurse Support

There is a National Macmillan nurse specialist who can offer advice and support to anyone in the UK affected by thyroid cancer. Her contact details are:


Tel: 02920 615 888 extn 6308