Welcome to Butterfly Thyroid Cancer Trust

Butterfly Thyroid Cancer Trust is the first national supporter of patients with Thyroid Cancer.

As a group dedicated solely to the support of patients with Thyroid Cancer we can offer fellow thyroid cancer patients who wish to join us the following:

  • Use of the dedicated helpline to speak to someone who has had the disease.
  • E-mail and telephone contact with group members to share experiences
  • A "buddy" to help you through the stages of surgery, Radioiodine treatment and follow up
  • Access to reliable up-to-date written information about the disease
  • Access to a group member in clinic at the Northern Centre for Cancer Care (NCCC), Freeman Hospital

We are available on this number on Monday to Friday 10am-4pm. Outside these times, please leave a message on our answer phone and we will get back to you as soon as we can.

Your Treatment Journey

Thyroid Cancer has an 80-90% cure rate. Find out about the steps you might take in your journey towards recovery.

About Thyroid Cancer

Learn about the different types of Thyroid Cancer, and which types of treatments are available to patients.

I131 Treatment

Useful information regarding Radioiodine (I131) treatment.

Thyroid Cancer Forum 2016

Butterfly hosted the first ever UK Patient/Doctor Thyroid Cancer Forum on 5th December 2016 in London.

Click one of the links below to watch a video of the event.

Thyroid Cancer Patient Information DVD

To view the full film please contact us for the password

Do you have progressed or advanced thyroid cancer? Watch the trailer for ‘ Christine’s Story - living with advanced thyroid cancer

Watch our film “ The Butterfly Effect” to learn how Butterfly began

Latest News

Dear Colleagues: Thyroid Cancer: Radioactive Iodine Treatment during COVID-19 pandemic (2) Now that we are a few weeks in to the COVID-19 pandemic and have a greater understanding of the disease and it’s trajectory we have revised our guidance on RAI treatment. It is anticipated that the pandemic will result in services being disrupted for […]


COVID-19 Advice for patients with thyroid cancer We are aware that many patients with cancer have already received generic advice from the Chief Medical Officer regarding ‘shielding’ during the COVID-19 pandemic. The advice given below has been developed by UK thyroid cancer doctors and is tailored to specific thyroid cancer scenarios. (i) Patients who have […]


We were delighted to receive the Bronze Award in the People’s Choice Category on April 21st ! Thanks to all who voted !



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His Grace the Duke of Northumberland
Dr.C.Harmer F.R.C.P. F.R.C.R
Prof .Markus Luster (Germany)
Dr.M.Tuttle MD (USA)


Kate Farnell M.B.E.


Dr J. Wadsley FRCR


Mr.R Bliss FRCS
Mr.F.W.Stafford F.R.C.S
Mr J Salter
Mr.D.J.Farnell Bsc
Mrs R Newton
Mrs L Abbs RN


Thyroid Cancer Specialist Nurse Support

There are National Macmillan nurse specialists who can offer advice and support to anyone in the UK affected by thyroid cancer. Their contact details are:


Tel: 02920 615 888 extn 6308

Information Nurse Specialists

Tel: 0808 808 0000 Press 1, Option 3