Welcome to Butterfly Thyroid Cancer Trust

Butterfly Thyroid Cancer Trust is the first national supporter of patients with Thyroid Cancer.

As a group dedicated solely to the support of patients with Thyroid Cancer we can offer fellow thyroid cancer patients who wish to join us the following:

  • Use of the dedicated helpline to speak to someone who has had the disease.
  • E-mail and telephone contact with group members to share experiences
  • A "buddy" to help you through the stages of surgery, Radioiodine treatment and follow up
  • Access to reliable up-to-date written information about the disease
  • Access to a group member in clinic at the Northern Centre for Cancer Care (NCCC), Freeman Hospital

We are available on this number on Monday to Friday 10am-4pm. Outside these times, please leave a message on our answer phone and we will get back to you as soon as we can.

Your Treatment Journey

Thyroid Cancer has an 80-90% cure rate. Find out about the steps you might take in your journey towards recovery.

About Thyroid Cancer

Learn about the different types of Thyroid Cancer, and which types of treatments are available to patients.

I131 Treatment

Useful information regarding Radioiodine (I131) treatment.

Thyroid Cancer Forum 2016

Butterfly hosted the first ever UK Patient/Doctor Thyroid Cancer Forum on 5th December 2016 in London.

Click one of the links below to watch a video of the event.

Thyroid Cancer Patient Information DVD

Do you have progressed or advanced thyroid cancer? Watch the trailer for ‘ Christine’s Story - living with advanced thyroid cancer

Watch our film “ The Butterfly Effect” to learn how Butterfly began

Latest News

This study run by the University of Sheffield and Sheffield Teaching Hospitals aims to determine patients’ quality of life following surgery for either thyroid or parathyroid disease. The survey will take 10 minutes to complete. The focus of this study is to look in depth at the effect of low blood calcium levels, one of […]


A new clinical trial is being proposed for people whose thyroid cancer is deemed ‘low risk and we would like to know how patients feel about this . If you were told that your thyroid cancer when you were given the diagnosis please could you help us by taking this short survey? Many thanks !  […]


NICE have finally given their decision on Lenvatenib and Sorafenib. Both drugs are recommended for the treatment of thyroid cancer which is no longer taking up RAI. However,patients can only have access to one of the drugs. This means that patients who are already taking Sorafenib will not be able to have Lenvatenib when and […]



Photos from Butterfly Thyroid Cancer Trust's post

Royal Free London are thrilled with their RAI room update as the before and after pictures show ! xx

4 days ago


His Grace the Duke of Northumberland
Dr.C.Harmer F.R.C.P. F.R.C.R
Prof .Markus Luster (Germany)
Dr.M.Tuttle MD (USA)


Kate Farnell M.B.E.


Dr J. Wadsley FRCR


Mr.R Bliss FRCS
Mr.F.W.Stafford F.R.C.S
Mr J Salter


Thyroid Cancer Specialist Nurse Support

There is a National Macmillan nurse specialist who can offer advice and support to anyone in the UK affected by thyroid cancer. Her contact details are:


Tel: 02920 615 888 extn 6308