Welcome to Butterfly Thyroid Cancer Trust

Butterfly Thyroid Cancer Trust is the first national supporter of patients with Thyroid Cancer.

As a group dedicated solely to the support of patients with Thyroid Cancer we can offer fellow thyroid cancer patients who wish to join us the following:

  • Use of the dedicated helpline to speak to someone who has had the disease.
  • E-mail and telephone contact with group members to share experiences
  • A "buddy" to help you through the stages of surgery, Radioiodine treatment and follow up
  • Access to reliable up-to-date written information about the disease
  • Access to a group member in clinic at the Northern Centre for Cancer Care (NCCC), Freeman Hospital

We are available on this number Monday to Friday from 10 am to 4 pm. Outside these times, please leave a message on our answer phone and we will get back to you as soon as we can.

Your Treatment Journey

Thyroid Cancer has an 80-90% cure rate. Find out about the steps you might take in your journey towards recovery.

About Thyroid Cancer

Learn about the different types of Thyroid Cancer, and which types of treatments are available to patients.

I131 Treatment

Useful information regarding Radioiodine (I131) treatment.

Thyroid Cancer Conference

Butterfly will be hosting the first ever Thyroid Cancer Conference for PATIENTS on 5th December 2016 12.30-5pm in London. Entry is free.

We expect the day will be oversubscribed so to book your place please email us enquiries@butterfly.org.uk.

Thyroid Cancer Patient Information DVD

Do you have progressed or advanced thyroid cancer? Watch the trailer for ‘ Christine’s Story - living with advanced thyroid cancer

Watch our film “ The Butterfly Effect” to learn how Butterfly began

Latest News

Delighted to announce that our DVD Thyroid Cancer Uncovered received ‘ Highly Commended’ at the BMA Patients Information Awards September 2016 !!!!  


Butterfly is hosting the first ever doctor/patient thyroid cancer forum. Join us on 5th December 2016 at The Royal Society of Medicine, Wimpole street, London. Click here for further information


RAI, the UK patient experience. A massive thanks to the 410 patients who kindly took part. We will be presenting the results at the BTCT Patient /doctor Conference in December.




His Grace the Duke of Northumberland
Dr.C.Harmer F.R.C.P. F.R.C.R
Prof .Markus Luster (Germany)
Dr.M.Tuttle MD (USA)


Kate Farnell M.B.E.


Dr.U.K.Mallick F.R.C.R


Dr.P.Perros F.R.C.P.


Mr.R Bliss FRCS
Rev A.J.Harding
Mr.F.W.Stafford F.R.C.S
Mr J Salter


Thyroid Cancer Specialist Nurse Support

There are two National Macmillan nurse specialists who can offer advice and support to anyone in the UK affected by thyroid cancer. Their contact details are:


Tel: 02920 615 888 extn 6308


Tel: 0808 808 0000
ask to speak to Gerri Hamilton, thyroid cancer CNS